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HVD 2018 Conference logo

Handicap-Vie-Dignité’s conference on the rights of residents and how to advocate for them, in public long-term care settings

Bilingual conference and workshops (French and English)

DOWNLOAD COMPLETE CONTENT OF THE WEBSITE IN PDF VERSION
HVD CONFERENCE 2018 BROCHURE
 

PRE-EVENT ADVERTISING

  • MARIE BEAULIEU

  • DAPHNE NAHMIASH

  • NICOLE POIRIER

  • NICOLE JAOUISH

  • JOHANNE RAVENDA

  • GHISLAINE PHARAND

  • DANIEL PILOTE

CONFERENCE OBJECTIVES:

Training and information for residents, their families, volunteers and caregivers – with the participation of employees of long term care facilities as well as the community – about innovative approaches and concrete strategies in order to:

  • Promote improved quality of life and respect of residents
  • Promote a better understanding of residents’ needs
  • Support easier navigation of the public health network related to long term care
  • Promote the respect of residents and ensure their implementation in daily life

CONFERENCE TARGET AUDIENCE:

  • Residents living in public long-term care settings, family caregivers and significant others who assist them
  • Residents’ committees and users’ committees
  • Stakeholders working with residents and family caregivers: patient attendants, nurses, licensed practical nurses, other industry professionals, and volunteers
  • Complaint and service quality managers and commissioners
  • Community support groups for seniors and persons with disabilities
  • Researchers, teachers, interns/students

WORKSHOPS
DESCRIPTIONS

CONSULT

CONFERENCE
SPEAKERS

CONSULT

EXPERT ADVISORY
COMMITTEE

CONSULT

THE
RECOMMENDATIONS

CONSULT

 

OPENING PANEL

Opening speech by Marie Beaulieu, holder, Research Chair in elder abuse

 

WORKSHOPS DESCRIPTIONS

DOWNLOAD WORKSHOPS OF HVD CONFERENCE 2018 (PDF VERSION)

  • WORKSHOP 1
  • WORKSHOP 2
  • WORKSHOP 3
  • WORKSHOP 4

ROLE AND LIMITS OF USERS’ COMMITTEES

THE ROLE AND THE LIMITS OF USERS’ COMMITTEES IN RESPONDING TO SITUATIONS OF MISTREATMENT IN LONG TERM CARE

Workshop offered in French and English

WATCH THE WEBCAST OF WORKSHOP 1

LEADERS
Marie-Ève Bédard, Ph.D., in gerontology
Researcher at the Centre collégial d’expertise en gérontologie du Cégep de Drummondville (Cegep Drummondville’s College Centre of Expertise in Gerontology)
Academic Research Advisor at the Cégep de Drummondville (Cegep Drummondville)
Active practicing member at the University of Sherbrooke’s Research Chair on Mistreatment of older adults
Benoit Racette, Trainer, Conseil pour la protection des malades (CPM)
Communicator and advocate for the right to health of minorities and disabled persons
OBJECTIVES

This workshop will remove the veil of secrecy over situations of abuse of older adults or vulnerable persons that are brought to the attention of the user committees, several members of which also sit on the residents’ committee; as well as the way in which these committees respond to situations of mistreatment; their role and their limitations. Through research results and experience-sharing in the area of advocacy on behalf of users, we will highlight the contribution of user committees in the fight against abuse of seniors and vulnerable persons in Quebec’s health and social service facilities.

More specifically, this workshop will provide participants with a better understanding of:

  • the nature and causes of abuse situations brought to the attention of the user committees, the majority of which occur in long-term care facilities.
  • the characteristics of abused and abusive individuals and the power dynamics between them
  • the actions implemented by the committees to deal with, prevent or rectify these situations of abuse
  • the impact of the committee, the needs and expectations that are taken into account or met addressed by the facility
  • the factors that support or curtail the user committees’ efforts to deal with situations of abuse and their autonomy
  • the sources of authority to which the committees have access within the facilities, the level of engagement needed to respond to situations of abuse and bring about change (terms of reference, legislation and rights related to users, regarding health care and with respect to vulnerable individuals)
  • how to act on practical recommendations for helping the committee step up its advocacy efforts on behalf of users and, by doing so, improve prevention and eradication of abuse in the health and social service network.
  • what institutional, legal and community resources are offered in support of this advocacy effort

ADVOCACY TO PROMOTE RESIDENT RIGHTS

ADVOCACY: A PROACTIVE APPROACH TO PROMOTE THE RIGHTS TO DIGNITY AND QUALITY OF CARE OF RESIDENTS IN SITUATIONS OF VULNERABILITY

Workshop offered in French and English

WATCH THE WEBCAST OF WORKSHOP 2

LEADERS
Ann Vergeylen, Caregiver, advocate
Master’s degree in Educational Technology, Concordia University
Trainer, NDG Community Commitee on Elder Abuse (NDGCCEA)
Johanne Ravenda, advocate, former patient attendant and caregiver
President and Cofounder with the late Hélène Rumak
Handicap-Vie-Dignité
Graduate of McGill University with a Masters in Social Work
OBJECTIVES

Any person living in a long-term care facility needs a person, free from any conflict of interest, to represent them and advocate for their dignity and right to proper treatment. In many cases, a family member or trusted friend is assigned this role. To become a better advocate, this individual needs to understand user rights in long-term care accommodations and how to apply and exercise them on a daily basis. In this workshop, you will learn what an advocate is and does and why it is important today to speak out on behalf of an institutionalized individual. As an informed advocate, you will also learn to identify and report the warning signs in care settings, including abuse and the more personal aspects of care. In doing so, you will be involved in reducing, if not eradicating, situations of abuse and neglect while proactively promoting proper treatment.

Through practical exercises, after this workshop, you will be able to:

  • Understand the concept of proactive advocacy
  • Understand its principles of response
  • Identify the rights and responsibilities of residents
  • Recognize situations of abuse and neglect in a long-term care setting
  • Instill a sense of responsibility in each and every one to report and respond when situations of abuse and neglect are suspected
  • Develop a tool box for improved response with the authorities involved
  • Identify the steps needed to lodge a complaint, either formal or informal, in order to prevent or rectify a situation of abuse or neglect
  • Identify strategies for addressing known barriers when lodging a complaint
  • Apply your knowledge of the rights of users to improve their quality of life in a long-term care setting

TOWARD PERSON-CENTERED CARE

ENSURING PERSONHOOD AT THE NUCLEUS OF INDIVIDUALIZED CARE

Workshop offered in French and English

WATCH THE WEBCAST OF WORKSHOP 3

LEADERS
Francine Cytrynbaum, MSW, University of Montreal
Teacher in social work, UQAM & Special Care Counselling, Vanier College.
Trainer and support group animator, Alzheimer Society of Montreal
Dayna Morrow, Bachelor degree, Therapeutic Recreation, Concordia University
Master’s degree , Family Life Education, McGill University
Teacher in Special Care Counselling, Vanier College
Trainer, Alzheimer Society of Montreal
OBJECTIVES

Person-centered care is the term used to describe the approach used in many long-term care settings…but is it? What does it really mean and is it truly being practiced? Either way, can it work, be successful and have its benefits for residents? How can gaps be identified and improvements in daily care practices be made? With the goal of creating interpersonal partnerships between care staff, people with dementia and their family members, implementing person-centered care plans needs to be holistic, individualized and flexible in nature and engage players in promoting the needs and the rights of the individual resident.

The workshop will use interactive exercises and case discussion in order for participants to be able to:

  • identify the concept of person centered care,
  • recognize the team players and their roles within the care plan,
  • identify where gaps may be in the approach to meeting needs,
  • promote and encourage advocacy of dignified residential treatment,
  • understand and be able to advocate for the right for residents to be treated with dignity,
  • identify and use interventions and techniques to meet individualized needs, and
  • develop a “toolkit” of the various components required by family caregivers and staff in order to promote effective individualized care.

PREVENT THE INAPPROPRIATE USE OF RESTRAINTS

PREVENTING THE USE OF PHYSICAL AND CHEMICAL (ANTIPSYCHOTIC DRUGS) RESTRAINTS AND FINDING ALTERNATIVES

Workshop offered in French and English

WATCH THE WEBCAST OF WORKSHOP 4

LEADERS
Susan Macaulay, B.A. (Communications), Concordia University
Author, blogger (Myalzheimersstory.com), advocate, activist against the inappropriate use of antipsychotic drugs in long-term care
Nathalie Houle, Clinical Nurse
Assistant to the head nurse and interim unit head for the CISSS des Laurentides
student in the Masters of Nursing program at the University of Montreal
Me Hélène Guay, Lawyer specializing in health law
Bachelor’s degree at McGill University
Masters degree in Health Law from the University of Sherbrooke
OBJECTIVES

Since 1998, the law authorizes under certain conditions the use of force, isolation, mechanical or chemicals means to prevent a person from inflicting harm upon himself or others. In 2002, the Ministry of Health adopted its orientations regarding the application of such measures. However, concerns are being raised with their use in long term care institutions. Are these restraints adapted and respectful of the needs of residents in long term care facilities, and respectful of the best practices? What improvements should be made? What initiatives and pilot projects have succeeded in avoiding the use of physical or chemical restraints in long term care institutions? For many, alternatives must be found in order to respect residents’ rights.

In this workshop, we will take a closer look at what comprises physical and chemical restraints in dementia care, how to recognize when they are being used and what are the potential risks and side effects of their use. By the end of the workshop, participants should be able to:

  • Identify the different types of physical and chemical restraints
  • Understand their supportive legal background and why they are being used
  • Understand the importance of the right to enlightened / informed consent in such a context
  • Identify the known consequences and the risks attached to the use of chemical restraints
  • Understand some of the alternatives to physical and chemical restraints
  • Understand the necessity for implication of residents and their family members to prevent inappropriate use of physical and chemical restraints
 

CONCLUSION

 

CONFERENCE SPEAKERS

Click on the photos to read the biographies


MEMBERS OF THE EXPERT ADVISORY COMMITTEE 2017-2018
(5 meetings since April 2017)

Linda August
Program Administrator - SAPA CIUSSS Accommodation, Centre-Ouest-de-l’île-de-Montréal, Training Manager in Mistreatment Prevention
Marie Beaulieu, Ph. D., MSRC/FRSC
Co-director, World Health Organization (WHO) Collaborating Centre, Senior Abuse.
Chairholder, Research chair on Senior Abuse, University of Sherbrooke, Faculty of Letters and Human Sciences, School of Social Work and Research Centre on Aging, CIUSS Estrie-CHUS
Marguerite Blais
Special Advisor — Older adults and Caregivers, Octane Strategy
Former politician and Minister Responsible for Seniors (2007-2012), Quebec National Assembly
Anne Bourbonnais, RN, Ph. D.
Associate Professor, Faculty of Nursing, Université de Montréal
Chairholder of the Research Chair in Nursing Care for Older People and their Families
Researcher, Research Centre of the Institut universitaire de gériatrie de Montréal of the Centre intégré universitaire de santé et de services sociaux du Centre-Sud-de-l’Île-de-Montréal universitaire de gériatrie de Montréal
Me Paul Brunet
President, Conseil pour la protection des malades (CPM)
Me Katherine Champagne
Coordinator, Antoine-Turmel Research Chair on the Legal Protection of the Elderly, Laval University
Francine Cytrynbaum
Teacher, Special Care Counselling, Vanier College / Lecturer, Social Work, at UQAM, Trainer and support group animator, Alzheimer Society of Montreal
Hélène Durand
Caregiver, Retired occupational therapist in long term care setting
Sophie Ethier
Associate professor and director, certificate program in Gerontology, School of Social Work and Criminology, University of Laval
Nicole Jaouich
Caregiver / President of the Residents’ Committee, CHSLD Saint Joseph de la Providence and Pavillon des Bâtisseurs / Secretary, Handicap-Vie-Dignité
Michel Gervais
Former Caregiver / Retired Teacher / Treasurer, Handicap-Vie-Dignité (HVD)
Ura Greenbaum
Director, Association for the Defense of People and Their Properties Under Public Curatorship / Member of the Board of Directors of the Table de concertation des aînés de Montréal.
Me Hélène Guay
Lawyer specializing in health law, Hélène Guay Firm
Roxane Leboeuf
Research Professional, Coordinator, Research Chair on Mistreatment of Older Adults, Sherbrooke University
Daphne Nahmiash
Gerontologist, Expert in Mistreatment of the Older Adults / Vice-president, Handicap-Vie-Dignité
Jean Noiseux
Resident, Centre d’hébergement Paul-Émile-Léger & Vice-President, User’s Committee, CSSS Jeanne-Mance
Susan Macaulay
Author, blogger Myalzheimersstory.com, advocate, activist against the inappropriate use of antipsychotic drugs in long-term care
Me Jean-Pierre Ménard
Lawyer, Ménard, Martin, Attorney for Handicap-Vie-Dignité (HVD) (Disability-Life-Dignity) / Collective Action against Hôpital Saint-Charles-Borromée
Marguerite Mérette
Former Nurse at CHSLD, Caregiver, Author (Pour la liberté d’être, Réflexions d’une infirmière en CHSLD)
Me Christine Morin
Chairholder, Antoine-Turmel Research Chair on the Legal Protection of the Elderly, Titular Professor, Laval University Faculty of Law
Me Geneviève Pépin
Lawyer, Ménard, Martin, Attorney for HVD / Collective Action against Hôpital Saint-Charles-Borromée
Ghislaine Pharand
Caregiver, former member of a residents’ committee
Daniel Pilote
Resident, CHSLD Champagnat de Saint-Jean-sur-le-Richelieu, Blogger, Monsieur P.
Nicole Poirier
Executive Director, creator of the Carpe Diem Approach, Alzheimer Resources, Trois-Rivières
Johanne Ravenda
Former Caregiver and Patient care attendant, Cofounder (with the late Helene Rumak) and President of Handicap-Vie-Dignité (Disability-Life-Dignity)
Yvon Riendeau
Social Gerontologist, Course instructor in Social Gerontology at UQAM, trainer for PABs and auxiliaries in CLSCs, trainer for nursing home staff, conference speaker for older adults.
Nathalie Ross
Former Program Director and Government Relations Officer, Canadian Multiple Sclerosis Society, Quebec Division
Me Angelique Tsasis
Legal Specialist in Health Rights, HVD Collaborator
Ann Vergeylen
Caregiver, Dementia Care Advocate, Board of Directors, Member of NDG Community Committee on Elder Abuse (NDGCCEA)

 

RECOMMENDATIONS

RECOMMENDATIONS FROM WORKSHOPS BY PARTICIPANTS

Consult workshop recommendations by participants.

HVD RECOMMENDATIONS ADAPTED TO THE POLICIES AND ORGANIZATION OF THE MSSS

Consult the HVD recommendations adapted to the policies and organization of the MSSS presented to Marguerite Blais, Minister of Seniors and caregivers.
 

RE-BROADCAST ADVERTISING

  • SUSAN MACAULAY

  • VARIOUS PARTICIPANTS

 

CLICK HERE TO WATCH THE REPLAY OF THE LIVE WEBCAST OF THE HVD CONFERENCE 2018

CAPSULES